A guest post from Ann Favreau:

My husband was diagnosed with vascular dementia in 2021. As a caregiver of my husband, I experienced all those aggravating questions and repetitions that come with his condition.

For the most part, I recognized my husband’s words for what they were, and I tried to respond cheerfully. Even simple conversation required a new set of rules.

Although I made the effort to be as positive as I could, I was aware of some of my negative behaviors. I’m a writer and a poet, so writing about our situation has helped me reflect on the impact of dementia … not only on my husband, but also on me as his primary caregiver.

Here’s a poem I wrote about living on “the edge.” Perhaps you can relate to my situation.

The life of a caregiver is an ongoing journey. At times, we need to recognize our limitations and simply do the best we can.

The Edge

I sense it,
The edge,
The insidious edge
Creeping into my voice.

The cheery lilt is fading,
Upbeat tone evading
A positive response.

It’s just the repetitions
That cause the aggravations
Even though, I know
His world is shrinking.

Think before I speak
Let a smile streak
Across my veiled face.

Put impatience aside,
Anxiety hide.
Banish annoyance.

I won’t let it prevail.
I’ll try not to fail
To answer joyfully.

Knowing that he won’t recall
But I’ll know when all
I say is tinged,
Shaded with the edge,
The insidious

creeping

edge.

************************

Ann Favreau is a retired educator. She is a member of the Florida Writers Association and the Florida State Poets Association.

Here is a link to purchase her latest book, “The Dementia Spiral,” on Amazon. In 24 poignant poems, she reflects on the impact of dementia on her husband and on herself as the primary caregiver. Songs & Smiles is part of the Amazon Associates program, so we may receive a small commission if you purchase items after clicking on this link.